Pierpaolo Mincarone

Pierpaolo Mincarone, PhD, is an engineer with a background in biomedicine, project management and health technology assessment. His research focuses are in the following fields:

– Health promotion (analysis of healthcare paths, process modelling, health technology assessment);

– Project management (fund-raising project preparation at national and European level; technical coordination of research projects; management of administrative, economic and reporting issues).

Main publications:

• • Radogna AV, Capone S, Di Lauro GA, Fiore N, Longo V, Giampetruzzi L, Francioso L, Casino F, Siciliano P, Sabina S, Leo CG, Mincarone P, Sabato E. A novel tele-medicine system to improve therapy monitoring in chronic respiratory diseases. ForItAAL 2018 (Ambient Assisted Living – 9th Italian Forum). Proceedings.

  1. • Mincarone P, Leo CG, Trujillo-Martín M del M, et al. Standardized languages and notations for graphical modelling of patient care processes: a systematic review. Int J Qual Heal Care. 2018;(January):1-9. doi:10.1093/intqhc/mzx197.

  2. • Mincarone P, Leo CG, Sabina S, Sarriá-Santamera A, Taruscio D, Serrano-Aguilar P, Kanavos PG. Reimbursed Price of Orphan Drugs: Current Strategies and Potential Improvements. Public Health Genomics, 2017. DOI: 10.1159/000464100.

  3. • Leo CG, Mincarone P, Sabina S, Latini G, Wong JB. A conceptual framework for rationalized and standardized Universal Newborn Hearing Screening (UNHS) programs. Ital J Pediatr. 2016;42(1):15. doi:10.1186/s13052-016-0223-1.

  4. • Mincarone P, Leo CG, Sabina S, et al. Evaluating reporting and process quality of publications on UNHS: a systematic review of programmes. BMC Pediatr. 2015;15(1):86. doi:10.1186/s12887-015-0404-x.

  5. • Mincarone P, Leo CG, Sabina S, Tordrup D, Taruscio D, Kanavos P. Reimbursed Price of Orphan Drugs: A Value Based Framework. Value Health. 2015;18(7):A678. doi:10.1016/j.jval.2015.09.2009.

  6. • Pai M, Iorio A, Meerpohl J, et al. Developing methodology for the creation of clinical practice guidelines for rare diseases: A report from RARE-Bestpractices. Rare Dis. 2015;3(1):e1058463. doi:10.1080/21675511.2015.1058463.

  7. • Taruscio D, Morciano C, Laricchiuta P, et al. RARE-Bestpractices: a platform for sharing best practices for the management of rare diseases. Orphanet J Rare Dis. 2014;9(Suppl 1):O14. doi:10.1186/1750-1172-9-S1-O14.

  8. • Taruscio D, Morciano C, Laricchiuta P, Mincarone P, Consortium R-B. RARE-Bestpractices: a platform for sharing best practices for the management of rare diseases. Rare Dis Orphan Drugs. 2014;1(1).

  9. • Taruscio D, Gentile AE, De Santis M, et al. EUROPLAN: a project to support the development of national plans on rare diseases in Europe. Public Health Genomics. 2013;16(6):278–87. doi:10.1159/000355932.